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Monday, July 27, 2009

Makeshift Medicine

I heard this story on NPR today, as I drove home from my aquatic physical therapy session. These PT sessions--paid for by my health insurance--are restoring my strength and ultimately will enable me to return to work.

My health insurance monthly premium consumes 84% of my Disability income. (That doesn't count the enormous annual deductible of $3,000, or expenses that aren't covered.) But because I have this insurance, I have access to world experts in treating Wegener's, and I can get the drugs to treat it--some of which would cost several thousand dollars each month if I were to pay out of pocket. I can have necessary CT scans and other diagnostic tests when I need them. I am blessed beyond belief.

I am also doing everything in my power to ensure that every single person in this country has what I have, and that we all can have it for a reasonable price.

In case the link expires :

Rural Medical Camp Tackles Health Care Gaps

It was a Third World scene with an American setting. Hundreds of tired and desperate people crowded around an aid worker with a bullhorn, straining to hear the instructions and worried they might be left out.

Some had arrived at the Wise County Fairgrounds in Wise, Va., two days before. They slept in cars, tents and the beds of pickup trucks, hoping to be among the first in line when the gate opened Friday before dawn. They drove in from 16 states, anxious to relieve pain, diagnose aches and see and hear better.

"I came here because of health care — being able to get things that we can't afford to have ordinarily," explained 52-year-old Otis Reece of Gate City, Va., as he waited in a wheelchair beside his red F-150 pickup. "Being on a fixed income, this is a fantastic situation to have things done we ordinarily would put off."

For the past 10 years, during late weekends in July, the fairgrounds in Wise have been transformed into a mobile and makeshift field hospital providing free care for those in need. Sanitized horse stalls become draped examination rooms. A poultry barn is fixed with optometry equipment. And a vast, open-air pavilion is crammed with dozens of portable dental chairs and lamps.

A converted 18-wheeler with a mobile X-ray room makes chest X-rays possible. Technicians grind hundreds of lenses for new eyeglasses in two massive trailers. At a concession stand, dentures are molded and sculpted.

Desperate For Health Care

The 2009 Remote Area Medical (RAM) Expedition comes to the Virginia Appalachian mountains as Congress and President Obama wrestle with a health care overhaul. The event graphically illustrates gaps in the existing health care system.

"We're willing to sleep in pickup trucks or cars and deal with the elements to at least get some kind of health care," Reece adds. He earned a six-figure income working for an international industrial supply firm until an accident five years ago left him disabled. Joining him for dental, vision and medical checks are his wife, daughter, son-in-law and three grandchildren.

"Tomorrow, I'm going to see the doctor to get my ear and my nose fixed!" grandson Jacob shouts excitedly. His nose appears battered and his ear has an oozing scab.

Before the gate opened, Loretta Miller, 41, of Honaker, Va., got four hours' sleep behind the wheel of her parked minivan. She was No. 39 in line for her eighth RAM expedition. Her visit last year saved her life.

"They done an ultrasound and told me that my gallbladder was enlarged and was ready to burst and it could kill me," Miller recalls. "They told me if I hadn't got help when I did, literally I could have died."

Medical, dental and vision help is often elusive for the 2,700 people seeking treatment during the three-day RAM event. Just over half of the people attending this year have no insurance at all, according to a survey of the patients conducted by RAM. Forty-seven percent could be considered underinsured, given unaffordable copays or gaps in coverage provided by Medicare, Medicaid and conventional insurance plans. Only 11 patients have dental insurance, and just seven have vision coverage.

"There's no doubt about it. There is a Third World right here in the United States," concludes Stan Brock, RAM's founder. Brock has organized similar medical expeditions in Asia, Africa and South America. "Here in the world's richest country, you have this vast number of people, some say 47 million, 49 million, that don't have access to the system and that's why [this] is necessary."

About 1,800 volunteers provide the medical, dental and logistical help, including hundreds of doctors, dentists, nurses, assistants and technicians.

Almost 4,000 Teeth

Miller is ecstatic when her number is called. The divorced hairdresser and mother of two is uninsured and in pain. But she had taken the time, even with little sleep, to put on makeup, braid her blond hair and dress in a white lace tunic. She walked briskly through the gate for what would turn out to be five hours in dental chairs, given the extraction of an abscessed tooth, three fillings and a root canal.

More than half of those seeking help sign up for dental exams and procedures. They fill the more than 70 dental chairs while hundreds wait their turn under tents nearby. Hundreds more out in the grassy parking lot hope they'll get their teeth cleaned and fixed before the event ends.

Dental health greatly affects general health, says Dr. Terry Dickinson, who directs the Virginia Dental Association and the RAM dental effort at the Wise fairgrounds.

"The infection in the mouth certainly has been shown to have an effect on systemic diseases," Dickinson explains. "So it's really critical that these folks be able to get infected teeth out and infection treated in the mouth because it's going to help them with their overall health."

The extent of infections is staggering. Dickinson and his team pull 3,857 teeth in 30 hours of work spread over 2 1/2 days. Some patients lose all their teeth. A 4-year-old had cavities filled in every tooth.

Who Is Responsible For Health Care?

Terrible teeth, obesity, smoking, high blood pressure and diabetes are common among the people seeking help here. That raises an important question. Are they at fault for their poor health?

"There's enough blame to go around for everybody. I think patients certainly have to have personal responsibility for what they're putting in their mouth, but we are also trying to create a better access care system. How are you going to get providers, whether it be dentists or physicians or anybody else, into these areas where economically these communities are struggling?" Dickinson asks.

That's a reference to the costs of medical and dental schools and the debts that graduates incur, which can be $100,000 and more. There's pressure to practice in more lucrative places beyond rural regions like Appalachia.

"There are areas of the country, and certainly Wise County is one of them, where there just aren't [enough] physicians," says Dr. Susan Kirk, an endocrinologist and diabetes specialist with the University of Virginia Health System, which provides specialists for the Wise RAM event. "We provide indigent care at the University of Virginia, but that's six hours away."

RAM founder Stan Brock is impatient with those who suggest the people seeking help in Wise are somehow at fault and unworthy of care given poor health habits.

"The rest of the population is not exactly in the best of shape themselves," Brock asserts. "They're eating well and, therefore, they're putting on weight and, therefore, they've got heart disease and the rate of diabetes in this country is going up. But, in the case of the well-to-do and the well-insured, they can afford to take care of it."

At the end of her long day with dentists, Loretta Miller was still numb with Novocain but grateful for the care she could not otherwise afford.

"It's well worth the drive and the wait," Miller said, close to 12 hours after her number was called. "You get tired and stuff. But you think about all the trips and the money it would have cost to have all this done. I couldn't have had it done."

She then laughs about standing in line again at 5 a.m. the next day so she can get eyeglasses to "see what they've done."

RAM organizers say they spent about $250,000 providing care worth about $1.5 million. In 10 years in southwest Virginia, they say, they've treated more than 25,000 people. They have eight more expeditions planned this year, from Virginia to California.

It could be any one of us standing in such a line, praying for the chance to have dental surgery at a fairground or our eyes examined and treated in a poultry barn. We are all subject to old age and sickness.

Thankfully, we are also each capable of taking action when our hearts tell us we simply must.

Sunday, July 26, 2009

A Fine Start

I don't know these people, but this is one wedding I'm sorry I missed.

Friday, July 24, 2009

This Very Moment

Some of you know the Wegener's has flared up again (D'oh!), and I'm back on the heavy-duty chemo I was first on in 2006. Both Wegener's and chemo can cause extreme weakness, so it's hard to tell which one is making me feel like a jellyfish washed up on the beach. At any rate, writing a blog post is just out of my reach until I can get my body and mind to cooperate.

I decided to post an excerpt from Jetsunma's most recent teaching. I hope you'll take 6 minutes and 39 seconds to enjoy it.




May you-- in this very moment--find peace, joy and comfort.

Thursday, June 25, 2009

Thank You, Farrah Fawcett


Even though the media followed every step of her journey with cancer for the past 3 years, it was still a shock to hear that Farrah Fawcett died today.

This woman whose beauty, fame and good fortune seemed limitless reminded me that all karma--positive and negative-- exhausts itself. She was the epitome of vibrant health for so many years. Like all beings, she probably never imagined how it would end. Even in the final months when she knew she was dying, she couldn't know exactly where and when it would occur, what it would be like. Would she die in her sleep? Would she slip into a coma, or be conscious and say her goodbyes?

A woman I spoke to last week just lost her father. He was elderly but had been in good health his entire life. Out of nowhere he developed Wegener's. It spread like wildfire, and he was gone within a month. The nine people killed in the D.C. train crash this week. Certainly every one of them expected to complete that commute like any other day. As I write this, it is announced that Michael Jackson has died of a heart attack. No warning, not one moment to say goodbye.

We are taught that contemplating the impermanence of all things is the most powerful meditation there is. So I take this gift from Farrah and share it with you. Be kind to someone--anyone-- today. Remember that the world is always full of last moments.

Saturday, June 20, 2009

Time for Tights



Today's the last day of Spring. Told ya....

(And good sport that he is, President Obama laughed all the way through it.)

Thursday, June 11, 2009

Unniversary

Today is not the anniversary of anything major in my personal life. I know that, because sometime during my 30's I began to mentally record important dates in my life. Not birthdays and things like that-- I'm still awful at remembering those-- but "anniversary" dates. The day I found my dog Laika living on the streets of Spain, and the date she died. The days I adopted Patch and Lotus. The day I became a chiropractor. The day I first saw my lama. The day I was ordained as a nun.

And then there are the Wegener's dates. The day I had to acknowledge that something was seriously wrong-- the first CT scan. The day I was diagnosed. And a boatload of other dates that make me shudder to remember.

The Wegener's dates are not all bad. The last day I had to be on oxygen. The last painful heparin shot. The day I got off chemo and steroids. The days I met my amazing doctors at Johns Hopkins, when each of them first told me, "I believe you" and "I can help you" and "Your life can be better than this."

My personal calendar is really filling up with all this. So I'm playing with this Anniversary Date Habit thing lately. Constantly counting the days "since" keeps me engaged with them as if they were the present. The past never gets to be "passed." At some point I'll be able to take a big pink eraser to all these mental dates and forget about them once and for all. But for starters, I'm just going to let myself ignore the big June dates this time around. They can come and go and if anyone asks "Wasn't it June when you ...?" I'll just look at them and say, "I have no idea. I'm just no good with dates."

Thursday, June 4, 2009

One Simple Act

I'm not really a writer, I just play one on the internet. So yesterday, when I decided to write a post about my sangha brother Sam and his encounter with a local snake, I couldn't figure out how to begin. Alas, this morning's Rigpa Glimpse of the Day fed me the opening :

What is compassion? It is not simply a sense of sympathy or caring for the person suffering, not simply a warmth of heart toward the person before you, or a sharp clarity of recognition of their needs and pain, it is also a sustained and practical determination to do whatever is possible and necessary to help alleviate their suffering.

Sam spent a lot of time living on our retreat land in rural Arizona and had met up with a few snakes before. So when he found a baby snake in his room at the temple on Sunday night, he picked it up. Unfortunately, the snake didn't know Sam to be the kind-hearted, gentle guy we all know him to be, so he bit Sam twice on his finger.

Sam's a long-time practitioner and a pretty cool customer. He put the snake into a flower vase and called a couple of sangha members to help identify it using the internet. They decided the snake was a poisonous copperhead, but before heading for the ER Sam circumambulated the Enlightenment Stupa three times carrying the vase full o' snake, making prayers for its auspicious rebirth. Then he walked out to the woods and set it free.

Not only was the snake's life saved, but it received rare and extraordinary blessings. Because of seeing and circumambulating the stupa, the little snake will attain enlightenment in some future life. Just from that one simple act.

The thing is, training one's mind to perform a "simple" act like that takes time and dedication. It takes consistent effort to counterbalance our conditioning. In this world we are taught that humans are superior life forms, and that among animals snakes are way down at the bottom. We are taught that animals live happy lives, even though the briefest observation would reveal that their lives are full of suffering. We are bombarded with societal norms that tell us there's only this one life, here and now. We are encouraged to act as if our actions--whether positive or negative-- only produce immediate results, or none at all. We just don't think long-term. And we really don't think about the distant, future lives of poisonous little snakes.

But on Sunday night as a result of his dedicated practice, Sam did. As our Aussie sangha would say, "Good on ya, Sam."